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Here to talk about taboo topics surrounding motherhood and the gaps in perinatal healthcare and reproductive health. Join your host Amber-lee from @thepowerofbirth (and editor Rigel from @b.d.esigns) as she engages in candid conversations with experts in health, science, fitness, maternity, sociology, and psychology and people with lived experiences. Together with our guests, we raise awareness, challenge biases and expose gaps in women’s health. We believe that by sharing your stories and information provided by experts, we can empower you to advocate for yourself and your wellbeing. We provide practical tips, education and a fresh perspective on perinatal health and modern motherhood through integrating lived experience and expert knowledge. At The Power of Birth and through this podcast, we’re here to reduce stigma, eliminate shame, and start important conversations that shift the way we think and practice. Together, we can break the silence, drive change and shape the future of women’s healthcare. You can visit the website for more information, free resources, and opportunities to share your story: www.thepowerofbirth.net Don’t forget to follow us on Instagram and Facebook and leave a review if you love the pod! Disclaimer: Please note that the advice given on this podcast is of general nature and should not be considered as personalised or professional advice. The information shared on this podcast is intended for educational and informational purposes only. We do not assume any liability for actions taken based on the content discussed in our episodes. We highly recommend conducting thorough research and seeking professional advice before making any decisions or taking any actions about your health and care providers. Please remember that the views and opinions expressed by our guests or the host do not necessarily reflect the views of The Power of Birth as a whole and we hope you find the conversations engaging and thought-provoking. Lastly, we would like to remind you that while we strive to provide accurate and up-to-date content, the world is constantly evolving and new information may emerge that could change the validity and applicability of advice given in previous episodes.
Episodes
Monday Jul 15, 2024
Monday Jul 15, 2024
In this episode, Amber-lee, your host, sits down with Ebony, a young mother from Brisbane, as she shares her journey living with Epilepsy and Charcot-Marie-Tooth disease (CMT), which is a group of inherited disorders that cause nerve damage. Ebony opens up about her diagnoses, the impact of these conditions on her young life and current life, and the emotional rollercoaster of discovering her son Flynn has inherited CMT sharing the early signs of the condition to the supportive interventions that have helped him thrive. Ebony shares the challenges specifically living with epilepsy and the many unknowns in her life. This episode sheds light on the realities of living with a disability and raising a child with a genetic condition and the importance of support, education, and understanding in navigating these challenges. Ebony shares her reflections on resilience, acceptance, and advocacy and it was a beautiful conversation.
You can find Ebony: @kingeeebs
Since this episode was recorded, Ebony has had her second baby via elective ceasarean and is enjoying the newborn bubble. For those wanting an update for her son Flynn, he is now walking and is enjoying his newfound skill. Ebony mentions that his feet still turn inward but they have been seeing a podiatrist to help as well as continuing with physio and hydro. Ebony says that Flynn has come so far since our conversation and that CMT definitely hasn’t stopped him from living a full life as a toddler.
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